Sunday, October 2, 2011

October 2, 2011

Happy Fall to everyone. As the weather starts to get colder, I hope that everyone stays warm. I am perfectly warm here in the NICU. I am continuing to grow and slowly showing progress with my breathing. I am still on a very small does of steroids, and will be getting off those in about a week. There is always the possiblity of having a set back after the steroids, but hopefully they have had me ween down slow enough that there will not be much of a problem. I am currently on the vent, but with no backup rate. That means that I am doing all of the breathing myself, with pressure support. I now weight 5 pounds 15 ounces, and am as cute as can be :) I had my second trach change yesterday, and all went well. The next change will be in two weeks, and mom and dad are supposed to do that one. They are also starting to do more of the care with me. They are starting to suction the trach and dad will be helping me with a big bath tomorrow night. They are even going to bring my tub from home so that we can have a special bathtime!!! I am up more throughout the day, and when I am awake, I am offered my bottle now. Sometimes I enjoy it... but if I am sleepy, I would rather not take it. Mom and dad also brought me a dvd player and some movies that I can watch throughout the day. This gives me more to look at... I love the colors in Nemo, The Incredibles, Elmo, and Big Bird! So... there is still no timeline as to when I may be coming home, but things are moving along, slow and steady.

Love from my daddy!

I am exhausted

I like watching movies!

Tummy time


  1. Glad he seems to be doing better! He is just adorable and I hope he continues to grow and heal. Thank you for sharing his pictures!

  2. Oh my gosh I am just in love with this little man! Those cheeks! I love that he is doing tummy time, too. He doesn't seem to be slowed down by that trach at all! Thank you, Amanda, for sharing more of these amazing moments and pictures with us. Thinking of you guys every day. Praying for the good word that he is heading home! xoxo Let me know if you need anything.

  3. He's just adorable, Amanda! Look at those big eyes! Are they brown like yours? Good job little Alexander! Enjoy your movies and keep working on tummy time. We think about you every day and you're in our daily prayers at night. xoxo.

  4. Great to hear the progress...wishing you all the very best and enjoy those movies! He is sounding very strong and getting bigger!