Tuesday, May 31, 2011
I had an ultrasound of my head done today. Besides the cold goo that they put on my head... the nurse practitioner looked at it and said that any the spot of bleeding that I have had is small and is resolving itself. So there is nothing new with that and, of course, that is very good! Other than that my feedings have continued to go up. I had 11 ccs. today and will increase to 12 ccs. tonight. The doctor said that if I continue to tolerate the increased feedings, then they will probably take out the picc line around Thursday! They decreased my steroids today in order to start getting me off them and in a few days I will be done with them. Hopefully I am able to maintain the good levels that I am at after my steroids.
Monday, May 30, 2011
Happy Memorial Day everyone. I spent most of the holiday sleeping and I have had a very good day. My vent settings are down a little more and I have had some really good blood gases. I am still tolerating my feedings and am up to 9 ccs. The doctor wrote an order to increase the feedings 1 cc. every 12 hours. In addition I now weigh 880 grams! That is about 1 pound 15 1/2 ounces. I hope that everyone else has had as nice of a holiday as I have!!!
Sunday, May 29, 2011
Happy one month birthday to me! This weekend has been up and down, and according to the doctors and nurses... that is the life of a premee. There is some mucus built up in my lungs and that is causing me to have a few more problems breathing. The nurses turned up the ventilator last night in order to help break up the mucus. However, throughout today my breathing has sounded better and therefore my ventilator settings have come back down. In addition, my feedings are continuing to be increased. I am not getting 7 ccs. and at my 9 o'clock feedings I will be up to 8 ccs! Hopefully this will help me grow faster which the doctors say is the most important thing for me to become healthier. The bigger I am, the better I am going to be able to fight off infection and breath better!
Friday, May 27, 2011
Things in the NICU are pretty much the same. My ventilator settings are down a little bit more and I am now up to 5cc. of breast milk! The doctor told mom that it would take 10 cc. for me to be able to maintain hydration without the IV fluids... however, they will probably continue the IV fluids until about 15 cc. feedings. He also said that there is a chance that I could be up to the 10 cc. feedings by early next week. The more I eat the more I grow, and the more I grow the stronger I am. The doctor also told mom that if I get to the 15 cc. feedings, they may take out my picc line. This is a good thing because the more lines I have going into me, the more chance of infections. The doctor also had a talk with the nurse practioner about possibly moving me to the conventional ventilator. They decided to wait a little longer and let me become a little stronger before they do that. The doctors rotate every three weeks, and therefore a new doctor will be starting on Monday. Hopefully he will continue with the same ideas as my current doctor. Today I am four weeks old... I have fought against all the odds and am stronger now than I was. Mom and dad keep saying that I must have been brought here for a reason, and that I teach them each and every day about strength. I may be small, but I have more strength in me then any full grown adult! I hope everyone enjoys their long weekends.
Monday, May 23, 2011
So... last night the nurses started giving me the steroids. They are going to start with six doses (three days). Since then, my blood gases have come back really good and they have gone down six settings on the ventilator! That is very exciting. We are hoping that the steroids are the right answer and that it helps my lungs enough to move foward and maybe off this ventilator. Mom and dad visit as many times a day as they can and they are keeping their hopes up. So far so good, and its time for me to get some good sleep. Mom said she will try to get some new pictures sometime this week, but it is not really easy always to get pictures in the nicu.
Sunday, May 22, 2011
I had a pretty difficult night last night, and spent a lot of today trying to remain calm and stable. The not so good news first, my ventilator settings had to be brought up quite a bit last night and the doctor has decided that it is time to start steroids for my chronic lung disease. I will be starting that tonight. Now, there is some better news... I had a bath last night and did really enjoy that. Also, I now weigh 780 grams (1 pound 12 ounces), so I am continuing to gain weight. Mom and dad are asking that the positive thoughts for me continue, as I need them now as I fight through this rough time. Thanks!
Saturday, May 21, 2011
Today was pretty much the same in my life. I am stable and no changes have been made to my medications or ventilator. As much as mom and dad want to hear that I am progressing, they are happy to know that I am stable too. The nurses said they were going to give me a bath tonight! Mom and dad also got my birth certificate and social security card in the mail, so I am an offical US citizen! I am tolerating the feeding well still so I am hoping to be able to give news on good progress real soon.
Friday, May 20, 2011
I am sorry that I was unable to post yesterday. Mom and dad have been working hard to get my house in shape, and the internet had to be unplugged for a day as new carpet was installed into the den and grandma's room. Now, the internet is back and my house is starting to look much better. Now, as for me... I am doing about the same. I started a new antibiotic for what the doctor thinks may be a lung infection (like pnemonia). It will take a few days to see if that is what I really have, and if the antibiotics are working. Other than that, I am still eating and the doctor says that it seems I am tolerating the feeds well. That is super important because I need to grow so that I can fight off infections easier! When mom and dad have visited me today and yesterday, I have been spending a lot of time sleeping. Happy three week birthday to me! Each week is a little closer to coming home to my mom and dad!
Wednesday, May 18, 2011
Life in the nicu is like always taking two steps foward and one step back. That is what we keep being told. Today I had a rough day. The doctors needed to move my ventilator settings back up because my blood gases were not that great. The good news is that they didn't have to move it up as far as they were last week, so overall there is still some progress. It is very frustrating, but hopefully I can take a day or two break and then come back stronger. The nurses, mom, and dad pretty much let me sleep most of the day, maybe it is just the rain :)
Monday, May 16, 2011
|Goodbye kisses from my daddy!|
Sunday, May 15, 2011
This has been a very quiet weekend. My belly is still bloated, but the color is starting to return to normal. The nurse practitioner told mom that they may consider restarting my feedings tomorrow if things continue to look good. The doctor may have something different to say about that, so we will have to wait and see. My oxygen is still looking good and they pushed the ventilator setting down one more today. They said they won't do anymore changes today, as they want to give me a chance to get used to the new settings. As boring as days like this can be, they make mom and dad happy as it means that I am stable and doing well. :)
Saturday, May 14, 2011
Today was a quiet day for me. The doctor told mom that I am stable and nothing is really new. They are not going to make changes as I am doing well. They did come down on my ventilator setting this morning, and I was able to handle that well all day. That makes mom and dad really happy because the more I can handle the lower ventilator settings, the closer I am to being moved to the other ventilator. That is important to them because that is when they will be able to hold me! My belly is still tender, but it is starting to look better. It's always something... however, I am happy that the doctor is still saying "stable." It's time now for bed as I was up quite a bit today with mommy. Sweet dreams everyone!
Friday, May 13, 2011
Monday, May 9, 2011
This infection isn't very nice. When mom and dad came to visit me this morning I was having a real hard time keeping the oxygen levels down. After trying a lot of different things, the nurse told mom and dad to put their hands on my back and head. After doing that for a few minutes, by oxygen levels started to stabalize. They spent a few hours with me and then left for quiet hours. While they were gone, I had my brain ultrasound and was able to keep my oxygen stable the whole time. When they came back, I had to have my heart ECHO done. So many tests in one day. I handled the ECHO well, and as soon as they were able to leave me alone my oxygen levels were great! It made mom so happy to see. She has decided that I simply have test anxiety. The results from the ECHO are not back, but... the ultrasound showed that there is a very small amount of bleeding in one ventricle around the brain. The right side of the brain is completly clear. So... this is good news. And... I was weighed and I gained 20 grams. I know that isn't much... however, most babies lose weight the first week, so it is good that I gained a little. I am hoping for a calm night with no tests and stable oxygen levels. Thank you for the continued prayers.... I know that they are helping me!
Saturday, May 7, 2011
Today was what the nurse called an "excellent" day. My oxygen levels were down a lot from yesterday... and... my ventilator settings were way down too! It has been a few days since things have been that low and consistent for so long. My eyes are open longer and both mom and dad were able to see me looking at them. It's hard to tell since it is dark in the room, but mom and dad both think I have brown eyes. Another great thing about today is that the chord that was inside me testing to blood pressure constantly has been removed! They will be testing my blood pressure every 12 hours. The less chords inside of me, the better. Overall it was a great day. Sweet dreams to everyone who has been keeping my in their prayers.
Friday, May 6, 2011
Happy one week birthday to me! I opened my eyes for the first time this morning. The nurse had to give me some medicine in my eyes, and I have kept them closed since. Since I sleep so much, I will not be having them open very often. That is good though because they aren't completly ready for the light. Since my eyes are open now though, the room is kept darker and a cover is kept over my bed when I am not being visisted. I am still eating the breast milk with no problems and had a pretty good day. My dad changed my diaper this afternoon. I was having a little hissy fit and therefore my oxygen had to be increased right before mom and dad camto visit. The doctor did a baby gram (x-ray) just to make sure that everything was ok. The baby gram came back all good. :) My Uncle Teddy came to meet me today also! After a good day, I am ready for some sleep and a great weekend. Thank you all for the continued prayers and positive thoughts.
Wednesday, May 4, 2011
Today I am five days old. The first five days of my life have been up and down and as more time goes on, the stronger I am becoming. I had a test this morning to see if the PDA in my heart has closed up. Mom and dad do not have the results yet, but my doctor did say that the technician reported that it looked like it was closing. That means that they will not be giving me any medicine to force it closed, and therefore, I can start to eat breast milk. We are waiting for the cardiologist to give the final ok after they look at the results. After not eating for five days, I am excited to have my first drops of milk. Other than that, today has been a quiet day for me. I have remained stable in all areas and when mom and dad visited me, they were able to hold my hand.